Hello my Friends.. :)
This is my 8 year old daughter..
I have little time to my blog, now my daughter isseriously ill.
She has get the disease M.S.U.D.
So when i have time and pictures, i will put them
out on my blog.. :)
I put out a web address for the disease as those
who wish can read what MSUD is..
I wish all my friends some really nice days..
Hei Remi!
SvarSlettNå har jeg lest meg opp litt på MSUD, og det høres jo alvorlig ut. Sjeldent også ettersom jeg forstår. Håper det går bra med den lille jenta di, slitsomt å være syk for ei så lita ei. Slitsomt å være forelder også, en vil jo at barna skal ha det bra!
Nydelig er hun! Hun likner på deg ser det ut som!
Ønsker deg og familien en fin uke!
nyelig jente Remi!!Ja det er en alvorlig sykdom.Ønsker dere mot og stryrke hva enn fremtiden bringer.ønsker att alt går bra med dere..Kjempeklem fra Beregen!!
SvarSlettMy heart aches for you…
SvarSlettI had never heard of MSUD before.
Checked out the website you posted, and learned a lot.
What an odd rare horrible diesease for a child or anyone to endure!
I am so sorry to hear of your news, and glad you posted about it to make people aware of what it is, and especially HOW you are doing to cope.
Posting and talking about it could provide some great therapy for you.
I will be thinking of you.
Your daughter is absoutely adorable, and I am sending her good thoughts.
Janie
I just re read your blog and noticed you have a 5 year old old with Asberger Syndrome as well. You have to be the best dad ever to have children that are challenged with disabilities, and illness as you described. I honor that you have them in your home, and taking great care of them. I do know a lot about Asberger's.
SvarSlettJanie
Hello Janie ..
SvarSlettI do my best ... but every day is not so easy .. but it gives me so much and see that smile and laughter of my children .. :)